Cure 4 Keith

I haven’t wrote in a while so I should let you all know the baby has arrived. A little girl was born to us February 28th. Her name is Keira Denise Jones. She has been tested and she is a 100% match for Keith. He can have his transplant now.
The truth is he has been doing so well I didn’t think this day would come. I kept putting the thought of a transplant to the back of my head. Since Keith has been out of trouble the last year the doctors recommend that I didn’t do a transplant unless we had a 100% match. So when Keira was born I had to face this ugly truth. This disorder is never going to go away my baby will be dealing with it for the rest of his life and we as a family will never have a normal life.
We are at the NIH now. We have been coming every month for 6 months. Today I checked to see how Little Jack was doing and I saw that he has passed. This disorder has affected us all and our precious sons have suffered more than anyone can imagine. As a mother and a friend I am heart broken about this news about Jack as I’m sure we all are.
I’m scared. I’m scared to say yes to a transplant that may or may not save my baby. I’m scared to wait to long. I’m scared I wont be strong enough for him.
For the mothers that have made that decision I am reaching out to you. I need to know how did you make the decisions. I need advice from those of you that have chose to go on with this.
I will be praying tonight for guidance and strength for all of us.
Thank You